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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in PHACE Syndrome near San Francisco, CA. Of these, 4 are Experienced, 2 are Distinguished, 2 are Elite and 1 are Advanced.

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    LocationClose
    9 providers found
      Elite in PHACE Syndrome
      Pediatrics | Dermatology
      Elite in PHACE Syndrome
      Pediatrics | Dermatology

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Elite in PHACE Syndrome
      Elite in PHACE Syndrome

      Ucsf Medical Group Business Services

      3100 San Pablo Ave, 
      Berkeley, CA 
       (8.9 miles away)
      Languages Spoken:
      English

      Christopher Hess is a Radiologist in Berkeley, California. Dr. Hess is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, Deep Brain Stimulation, and Vertebroplasty.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in PHACE Syndrome
      Distinguished in PHACE Syndrome

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Mark Mamlouk is a Radiologist in San Francisco, California. Dr. Mamlouk has been practicing medicine for over 17 years and is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Tissue Biopsy.

      Learn about our expert tiers
      Distinguished in PHACE Syndrome
      Dermatology | Pediatrics
      Distinguished in PHACE Syndrome
      Dermatology | Pediatrics

      University Of California San Francisco

      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Erin Mathes is a Dermatologist and a Pediatrics provider in San Francisco, California. Dr. Mathes is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Lamellar Ichthyosis, Hemangioma, Aplasia Cutis Congenita, and Tissue Biopsy.

      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Regents Of The University Of California - Ucsf

      505 Parnassus Ave, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Dana Feigenbaum is a Dermatologist in San Francisco, California. Dr. Feigenbaum is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Linear Hamartoma Syndrome, Vascular Birthmark, and Stork Bite.

      Experienced in PHACE Syndrome
      Neuroradiology | Radiology
      Experienced in PHACE Syndrome
      Neuroradiology | Radiology

      University Of California San Francisco

      400 Parnassus Ave, Mcb300, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Steven Hetts is a Neuroradiologist and a Radiologist in San Francisco, California. Dr. Hetts is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arteriovenous Malformation, Vein of Galen Aneurysm, Cerebral Arteriovenous Malformation, Thrombectomy, and Embolectomy.

      Experienced in PHACE Syndrome
      Dermatology | Pediatrics
      Experienced in PHACE Syndrome
      Dermatology | Pediatrics

      Regents Univ Of California Ucsf

      505 Parnassus Ave, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Renee Howard is a Dermatologist and a Pediatrics provider in San Francisco, California. Dr. Howard is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Comedones, Molluscum Contagiosum, PHACE Syndrome, and Cheilitis Glandularis.

      Experienced in PHACE Syndrome
      Child and Adolescent Psychiatry | Neurology
      Experienced in PHACE Syndrome
      Child and Adolescent Psychiatry | Neurology
      505 Parnassus Ave, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Heather Fullerton is a Child and Adolescent Psychiatrist and a Neurologist in San Francisco, California. Dr. Fullerton is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stroke, Vein of Galen Aneurysm, Arteriovenous Malformation, Thrombectomy, and Embolectomy.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      505 Parnassus Ave, M798, Box 0114, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Christine Fox is a Neurologist in San Francisco, California. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stroke, Arteriovenous Malformation, Seizures, Thrombectomy, and Extracranial-Intracranial Bypass Surgery.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of PHACE Syndrome?

      PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

      When should I see a PHACE Syndrome doctor near San Francisco, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a PHACE Syndrome doctor near San Francisco, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank PHACE Syndrome doctors near San Francisco, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by PHACE Syndrome doctors near San Francisco, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a PHACE Syndrome doctor near San Francisco, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different PHACE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a PHACE Syndrome doctor near San Francisco, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my PHACE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female PHACE Syndrome doctors near San Francisco, CA?

      Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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