The 20 Best PHACE Syndrome Doctors Near Me in San Francisco, CA

Find the Top PHACE Syndrome Experts and Specialists

The 20 Best PHACE Syndrome Doctors near San Francisco, CA

Last Updated: 02/22/2026

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MediFind found 9 doctor with experience in PHACE Syndrome near San Francisco, CA. Of these, 4 are Experienced, 2 are Distinguished, 2 are Elite and 1 are Advanced.

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9 providers found
    Christopher Hess
    Elite in PHACE Syndrome
    Neuroradiology | Radiology
    Elite in PHACE Syndrome
    Neuroradiology | Radiology

    Precision Spine And Peripheral Nerve Center

    185 Berry St., Lobby 6, 
    San Francisco, CA 
     (1.5 miles away)
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, Deep Brain Stimulation, and Vertebroplasty.

    Elite in PHACE Syndrome
    Elite in PHACE Syndrome

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English

    Ilona Frieden is a Pediatrics provider in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

    Distinguished in PHACE Syndrome
    Pediatrics
    Distinguished in PHACE Syndrome
    Pediatrics

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English

    Erin Mathes is a Pediatrics provider in San Francisco, California. Dr. Mathes is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Lamellar Ichthyosis, Hemangioma, and Aplasia Cutis Congenita.

    Learn about our expert tiers
    Lewis Z. Leng
    Distinguished in PHACE Syndrome
    Neurosurgery | Neurology
    Distinguished in PHACE Syndrome
    Neurosurgery | Neurology

    Sutter Pacific Medical Foundation

    1100 Sutter St, Flr 6, 
    San Francisco, CA 
     (1.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Lewis Leng is a Neurologist and a Neurosurgery provider in San Francisco, California. Dr. Leng is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arterial Calcification of Infancy, PHACE Syndrome, Hydrocephalus, Balloon Sinuplasty, and Awake Craniotomy.

    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome

    Office

    2211 Post St Ste 404, 
    San Francisco, CA 
     (1.2 miles away)
    Languages Spoken:
    English

    Dana Feigenbaum is a Dermatologist in San Francisco, California. Dr. Feigenbaum is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stork Bite, Vascular Birthmark, Linear Hamartoma Syndrome, and Familial Multiple Nevi Flammei.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Cerebrovascular & Stroke Program

    1825 4th St, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Steven Hetts is a Radiologist in San Francisco, California. Dr. Hetts is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arteriovenous Malformation, Vein of Galen Aneurysm, Cerebral Arteriovenous Malformation, Thrombectomy, and Embolectomy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Pediatric Headache Program

    1825 4th St Fl 5A, 
    San Francisco, CA 
     (0.1 miles away)
    Languages Spoken:
    English

    Christine Fox is a Neurologist in San Francisco, California. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stroke, Arteriovenous Malformation, Seizures, Thrombectomy, and Extracranial-Intracranial Bypass Surgery.

    Experienced in PHACE Syndrome
    Pediatric Neurology
    Experienced in PHACE Syndrome
    Pediatric Neurology

    University Of California At San Francisco

    1825 4th St, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English

    Heather Fullerton is a Pediatric Neurologist in San Francisco, California. Dr. Fullerton is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stroke, Vein of Galen Aneurysm, Arteriovenous Malformation, Thrombectomy, and Embolectomy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Radiation Oncology At Oakland Medical Center

    3701 Broadway, 
    Oakland, CA 
     (9.5 miles away)
    Languages Spoken:
    English

    Bree Zimmerman is a Pediatrics provider in Oakland, California. Dr. Zimmerman is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Sternal Cleft, Stork Bite, Vascular Birthmark, and Familial Multiple Nevi Flammei.

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    Last Updated: 02/22/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor near San Francisco, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor near San Francisco, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors near San Francisco, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors near San Francisco, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor near San Francisco, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor near San Francisco, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors near San Francisco, CA?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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